Table 2.

Questions and themes from the interviews with the people with younger onset dementia living alone

Can you describe how it all started, the changes, and the process of being diagnosed (asked only at the first interview)?

How is your everyday life since you received the dementia diagnosis?

Can you describe the changes you have experienced and how you cope with them?

Does the disorder affect your relationships or contacts with family members or other people?

Do you feel that you are included in the treatment and services you receive?

Have you experienced other people making decisions for you? If so, how does that make you feel?

Has your quality of life changed since receiving the dementia diagnosis?

Do you need support or information of any kind?