Table 1.

Interview topics and probes.

Questions	Probes
When did you first start to experience migraine?	How did you feel when you first started to experience migraine?
Could you tell me what personal research have you done around migraine? (eg, family/friends, self-help books)	Do you know anyone else in real life who experiences migraine?
Could you talk about any social media platforms you have used specifically relating to migraine? (eg, Twitter, Facebook, blogging)	What were your motivations for you to visit this website or use this app?
Have you ever found information or support for your migraines on social media that you didn’t find elsewhere?	Has being part of the online migraine community impacted on your migraine management?
Could you describe how you use social media in the context of your migraine to find out new information and advice?	Do you use the official NHSa choices website to gather information about migraine?
Could you describe how you use social media in the context of your migraine to share information and advice?	Would you say you primarily seek to find out information or to share it?
Have you found communicating online with others who have migraine a supportive experience?	Is the social support online different to offline?
Could you describe any benefits of having an online presence?	What can social media offer that other sources of information cannot?
Could you describe any drawbacks of having an online presence?	Do you find the information to be accurate and reliable?
Do you see social media platforms as a way of gaining expertise in migraine knowledge?	How does this compare to traditional methods of speaking one-to-one in person with a healthcare professional?
What kind of impact has using social media had on your identity?	How do your migraines fit into your online identity?
Have you ever had a bad reaction from other people in relation to experiencing migraines?	Has social media helped you to deal with this reaction?
Is there any way you would like to see social media platforms for migraine improved?	Potential areas: Convenience, quality, comprehensiveness, immediacy of information, user demographics, user uptake, privacy.
Would you recommend that other people who experience migraine use social media?	Could you explain why you would or wouldn’t recommend it?

^aNHS: National Health Service.