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. 2019 Jul 8;14:169. doi: 10.1186/s13023-019-1152-z

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© The Author(s). 2019

Open AccessThis article is distributed under the terms of the Creative Commons Attribution 4.0 International License (http://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons license, and indicate if changes were made. The Creative Commons Public Domain Dedication waiver (http://creativecommons.org/publicdomain/zero/1.0/) applies to the data made available in this article, unless otherwise stated.

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Fig. 4 — International registry data protection structure. We present the digital structure of the international registry, which will be used for outcome monitoring of quality aims and research questions. Each participating centre will retain ownership of the data. All data is uploaded pseudonymized. Privacy is secured according to German laws and guidelines, thus the system can be used Europe-wide. The versatile user-interface of the registry will run on Castor EDC (CIWIT B.V., Amsterdam, the Netherlands)