Table 1. . Counts of abstracts of the Patient-Centered Outcomes Research Institute-funded projects.
PCoR scale items | Δ = 0 | Δ = 1 same | Δ = 1 different | Δ = 2 |
---|---|---|---|---|
1. Beliefs are defined as the state of mind in which a person thinks something to be the case, with or without there being empirical evidence to prove that something is the case with factual certainty. Beliefs can be cultural or faith-based. Does the information reflect beliefs you think are relevant to the population of interest (or to patients/community members in general)? | 10 | 8 | 5 | 7 |
2. Attitudes are defined as ‘settled/ingrained ways of thinking or feeling about someone or something, typically one that is reflected in a person's behavior, whether consciously or unconsciously’. Attitudes can be positive or negative, mixed or unsure, and are particularly relevant in reference to research/healthcare. Does the information reflect attitudes you think are relevant to the population of interest (or to patients/community members in general)? | 10 | 10 | 3 | 7 |
3. Concerns are defined as ‘matters of interest or importance to someone’. Concerns can be related to feelings about how the research is developed and carried out. Does the information reflect concerns you think are relevant to the population of interest (or to patients/community members in general)? | 11 | 11 | 5 | 3 |
4.Values are defined as ‘a person's principles or standards of behavior; one's judgments of what is important in life’. Values can relate to new medication, treatment opportunities and/or cost–effectiveness. Does the information reflect values you think are relevant to the population of interest (or to patients/community members in general)? | 7 | 12 | 1 | 10 |
5.Are patient and/or community needs taken into consideration? | 12 | 3 | 3 | 12 |
6.For any suggestions given, are the suggestions relevant to the population of interest (or to patient and/or community members in general)? | 8 | 8 | 2 | 10 |
7. Does the information address patient-centered and/or community-centered outcomes? | 10 | 12 | 3 | 5 |
8. Does the information address research priorities of the population of interest (or patient and/or community members in general)? | 8 | 11 | 3 | 8 |
9. Does the information address healthcare needs of the population of interest (or patient and/or community members in general)? | 10 | 11 | 4 | 5 |
10.Does the information address the best methods to communicate with the population of interest (or patient and/or community members in general)? | 11 | 7 | 2 | 10 |
11. Does the information address opportunities to engage the population of interest (or patients and/or community members in general) in decision-making around the research planning, implementation or results dissemination? | 10 | 10 | 3 | 7 |
Note: Questions in italics are those that were eliminated from the final version of the PCoR Scale.
Table shows the number of questions given the exact same rating by each of two raters (Δ = 0), as well as how many questions had scores that differed by only one point but remained in the same category (either both rated as nonpatient-centered [a 1 and a 2] or both rated as patient-centered [a 3 and a 4]; Δ = 1 - same), and those that differed by one point but changed the category (e.g., a rating of 2 by one rater and 3 by the other rater; Δ = 1 - different) or those that differed by two or more points (indicating extreme unreliability; Δ = 2).
PCoR Scale: Person Centeredness of Research Scale.