Table 2.
Main daily tasks of caregivers (extracted from verbatim)
| Caregivers | Main daily tasks |
|---|---|
| C1 |
Clinical monitoring of the patient night and days (and of the technical equipment) Change of work schedule to help the patient (very early in the morning, alternating work with C2 so someone is always present) Help to move the patient (Carrying and accompanying the patient: toilets, shower..) Replacement of dirty sheets Cooking for the patient Accompaniment of the patient outside and to the hospital Daily organization Management of medical appointments Coordination between hospital and HAH Management of medical emergencies (coordination between HAH/ambulances and accompaniment to the ER) Management of the paperwork Moral support |
| C2 |
Clinical monitoring of the patient night and days (and of the technical equipment) Change of work schedule to help the patient (very late in the evening, alternating with C1 so someone is always present) Help to move the patient (Carrying and accompanying the patient: toilets, shower..) Accompaniment of the patient outside and to the hospital Daily organization Management of medical emergencies (coordination with HAH/ambulances and accompaniment to the ER) Moral support |
| C3 |
Management of the paperwork Coordination with the hospital, management of the medical appointment and of the transfers to the hospital and back Accompaniment of the patient outside Daily organization Takes part to the nursing care Carrying the patient (toilets, shower) Moral support |
| C4 |
Accompaniment of the patient to the hospital Preparation of the daily equipment used for nursing care Clinical monitoring Moral support |
| C5 |
Sleeps on the couch because of the medical bed Cleaning of the house Accompaniment of the patient to the hospital Carrying of the patient Presence and participation during the nursing care Moral support |
| C6 |
Participation to the patient’s hygiene Participation to the nursing care Daily preparation of the pillbox Coordination with the hospital (appointments, prescriptions) and between the hospital and HAH Management of the patient’s transfers to the hospital and back Management of the meals Moral support |
| C7 |
Management of medical emergencies (coordination with HAH/ambulances and accompaniment to the ER) Carrying the patient Drives the patient to appointments Participation to nursing care Daily preparation of the medications Moral support |
| C8 |
Management of technical emergencies Participation to nursing care Management of daily organization Change of work schedule to help the patient (comes back to prepare lunch and stopped all external activities to be home) Clinical monitoring of the patient and equipment Moral support |
| C9 |
Daily shopping and meal preparation Accompaniment of the patient to the hospital Moral support |
| C10 |
Daily organization Accompaniment of the patient to the hospital Moral support |