Table 2. HDQ Summary scores for participants in the UK sample (n = 243).
| HDQ Subscale (# items) | HDQ Presence (Median, IQR) (Range) |
HDQ Severity Score (Median, IQR) (Range) |
HDQ Episodic Presence Score (Median; IQR) (Range)* |
|---|---|---|---|
| Physical symptoms and Impairments (20 items) | 25 (15, 45) Range: 0–90 |
9 (4, 18) Range: 0–58 |
5 (0, 20) Range 0–80 |
| Cognitive symptoms and impairments (3 items) |
33 (0, 67) Range: 0–100 |
8 (0,25) Range: 0–100 |
0 (0, 0) Range: 0–100 |
| Mental-emotional health symptoms and impairments (11 items) | 54 (27, 82) Range: 0–100 |
18 (7, 34) Range: 0–89 |
0 (0, 27) Range: 0–100 |
| Uncertainty (14 items) |
64 (43, 86) Range: 0–100 |
27 (14, 41) Range: 0–98 |
0 (0,7) Range: 0–86 |
| Difficulties with Day-to-Day Activities (9 items) |
0 (0,22) Range: 0–100 |
0 (0, 7) Range: 0–61 |
0 (0,0) Range: 0–89 |
| Challenges to Social Inclusion (12 items) | 33 (17, 58) Range: 0–100 |
12 (4, 27) Range: 0–81 |
0 (0,0) Range: 0–83 |
| Total HDQ Score | 38 (22, 57) Range: 0–93 |
14 (8, 23) Range: 0–70 |
2 (0, 16) Range: 0–81 |
Higher scores indicate greater presence, severity and episodic nature of disability.
Bold indicates the highest score across all domains
*For the episodic scores, due to the higher rate of missingness we conducted a post hoc comparison and found no difference in episodic scores post median imputation.