Medical information and finding experts

https://rarediseases.info.nih.gov/diseases/10771/kallmann-syndrome

https://www.orpha.net/consor/cgi-bin/OC_Exp.php?Lng=GB&Expert=478

https://www.chuv.ch/en/hhn/hhn-home/

Lay Information

https://www.youtube.com/watch?v=yKfThHq9Vjs

https://globalgenes.org/raredaily/the-24-year-old-late-bloomer-kallmann-syndrome/

https://en.wikipedia.org/wiki/Kallmann_syndrome

https://www.chuv.ch/en/hhn/hhn-home/

Patient Perspectives and Peer-to-Peer Support

Facebook:

– Kallmann Syndrome Links and Help (OPEN group)

– Kallmann Syndromers (CLOSED group)

– Kallmann Syndrome & Hypogonadotropic Hypogonadism (SECRET group)

https://www.news-medical.net/health/Kallmann-Syndrome.aspx

https://www.rareconnect.org/en/community/kallmann-syndrome

https://www.youtube.com/watch?v=eitQYgCqA-0

General Rare Disease Resources

https://rarediseases.org/

https://www.eurordis.org/

http://www.agsa-geneticsupport.org.au/

^* Working links as of August 2018.