Table 8.

From the list below, what are the three main pieces of information about the project that would be important for you to receive? (Please select three responses in priority order)

(n = 2013)	Number of people	% of responses
Detail on how the project could be beneficial for your disease or other diseases	1605	80%
Brief summary of the key information necessary to understand the main aspects of the project	1032	51%
Information about the data management rules (ie. how access to my health information will be granted or is there an ethical review?)	988	49%
Information about professionals involved in the project who can access the health information (e.g. their biography)	797	40%
Information on how professionals involved in the project might benefit professionally from accessing my health information	750	37%
Information on the measures taken to prevent security breaches	561	28%
Don’t know	64	3%
I wouldn’t give the possibility of sharing these health information	28	1%
Other	26	1%

Several answers possible, so percentage does not total 100%