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. 2019 Apr 22;17(2):127–134. doi: 10.1089/lrb.2018.0081

Table 4.

Tools, Methods, and Data Delivered

Tool Method Deliverables
Core tool    
 Core case ascertainment questionnaire. Questionnaire completed by health care professionals Profile of patients with chronic edema
 Identification of patients with chronic edema in health care systems Chronic edema confirmed by pitting test and confirmation of history of chronic edema >3 months Age/gender/duration and site of chronic edema
    Subjective control of swelling
  Level of obesity
  Mobility
 Used in all studies   Relevant comorbidities
  Classification of cause of chronic edema
  Previous treatment
  Cellulitis history
  Presence of a wound
  Access to treatment
Module tools    
 Assessment of functional impact. Data were gathered from patients using clinical assessment and interviews, either by self-completion or completion by a health professional. The Module Tools collected data that looked in more depth at factors affecting the life of the patient as well as care delivery, such as the impact on discharge from hospital or accessing appropriate care, including:
     Personal details, including living status, educational attainment, employment status
  Demographics and Disability assessment (WHODAS 2.0)    Details of swelling
  Quality-of-life assessment (LYMQOL+EQ-5D+ LFSQQ)    Mobility status
  Details of swelling    Quality of life
  Wound assessment    Impact of cancer
  Cancer details    Type and impact of wound
      Factors affecting delivery of care and discharge
      Resource use