Table 1.

Interview Questions on Reproductive Health and Parenting

• Have you talked with your CF team about reproductive issues/concerns related to CF? Can you tell me about the conversations you had with your CF providers about reproductive health in CF prior to having children?

• What information about reproductive health [related to CF/your health] has been most helpful for you?

• What is it like to be a parent while living with CF?*

• How, if at all, does having CF play a role in your decision-making about having children? *

• What are your thoughts or concerns about being a parent and managing your CF?

• How does having CF affect you as a parent, if at all?*

• Since becoming a parent, how does having children impact your decisions about CF treatments, if at all?*

• How, if at all, would your decision-making be different if you had children?**

• What has been the most difficult part of managing your CF with respect to having children or about considering becoming a parent?

• Related to your health, what are your biggest worries or concerns as a parent or about becoming a parent?

• Do you children know you have CF?* • Follow-up questions: What do they know? How did they find out?

• What guidance have you received about communication with children; if none, what guidance would you like to receive?*

• How important is it that your CF care team understands your role as a parent (Very important; Moderately important; Somewhat important; Not important at all)?*

• What has been helpful to you as a parent with CF/related to your health; what has not been helpful?*

• If you were giving advice to another person with CF, what would be helpful for them to talk about with their doctors or with others related to reproductive health and parenting?

• If you could create resources to meet the needs of other parents with CF who have children or who are considering having children, what would they be?  ○ What specific information would have been helpful for you at the time when you were thinking about having children? Now that you have children?  ○ How should this information be presented?  ○ At what age do you think it would be most helpful for people with CF to receive this type of information?  ○ Are there other resources that you have found helpful? What are they?

^*Questions asked only to participants who had children

^**Questions asked only to participants who did not have children