Table 2.
Patients | Caregiver | Overall | |||||
---|---|---|---|---|---|---|---|
Yes | No | p-value* | Yes | No | p-value* | p-value* | |
Higher education** | 74 | 32 | 33 | 14 | |||
Willing to participate, N (%) | 72 (97.3) | 30 (93.7) | 0.58 | 27 (81.8) | 13 (92.9) | 0.66 | 1 |
Motivations selected by those willing to participate, N (%)*** | |||||||
I suffer from PD/have a relative who suffers from PD | 59 (81.9) | 25 (83.3) | 1 | 23 (85.2) | 12 (92.3) | 1 | 0.81 |
To help future generations with PD | 39 (54.2) | 14 (46.7) | 0.52 | 17 (63.0) | 7 (53.8) | 0.73 | 0.46 |
To help find a cure for PD | 69 (95.8) | 28 (93.3) | 1 | 25 (92.6) | 12 (92.3) | 1 | 1 |
To find new/better treatments for PD | 51 (70.8) | 19 (63.3) | 0.49 | 22 (81.5) | 7 (53.8) | 0.13 | 0.16 |
To improve science and knowledge about PD | 45 (62.5) | 8 (26.7) | 0.001 | 19 (70.4) | 7 (53.8) | 0.48 | 0.002 |
I’m encouraged by family/friend to participate | 11 (15.2) | 5 (16.7) | 1 | 7 (25.9) | 0 (0.0) | 0.07 | 0.46 |
*Fisher’s exact test; **Higher education defined as education received after high school; ***Other (encompassing any other reasons participants indicated as motivation, not in the predetermined list) was not analyzed due to low number of endorsements.