Table 1.
Demographic and disease characteristics of total sample of IBD patients (10–20 years)
| Group | Total | |||
|---|---|---|---|---|
| CD | UC/IBD-U | |||
| N | 147 | 115 | 262 | |
| Demographic characteristics | ||||
| Age (years), mean (SD) | 17.19 (2.52) | 16.15 (2.98) | 16.74 (2.77) | |
| Male (%) | 50.3 | 41.7 | 46.6 | |
| SES (%)a | Low | 17.7 | 13.0 | 15.6 |
| Middle | 32.7 | 40.9 | 36.3 | |
| High | 38.1 | 43.5 | 40.5 | |
| Disease characteristics | ||||
| Disease type (%) | CD | 100 | 0 | 56.1 |
| UC | 0 | 84.3 | 37.0 | |
| IBD-U | 0 | 15.7 | 6.9 | |
| Age at diagnosis (years), mean (SD) | 14.25 (3.02) | 13.18 (3.97) | 13.78 (3.50) | |
| Disease duration (years), median (IQR) | 2.26 (0.97–4.39) | 1.90 (0.62–4.73) | 2.03 (0.81–4.56) | |
| Active disease (%)b | 31.3 | 30.4 | 30.9 | |
| Psychological characteristics | ||||
| Elevated anxiety symptoms (%)c | 49.7 | 50.4 | 50.0 | |
| Elevated depressive symptoms (%)c | 15.6 | 20.9 | 17.9 | |
| Elevated anxiety and depression (%)c | 14.3 | 20.0 | 16.8 | |
| HRQOL, mean (range) | 143.36 (76–174) | 141.91 (82–173) | 142.72 (76–174) | |
| Illness perceptions, mean (range) | 34.75 (3–69) | 36.69 (9–70) | 35.63 (3–70) | |
| Adaptive cognitive coping, mean (range) | 57.67 (20–92) | 55.72 (21–97) | 56.78 (20–97) | |
| Maladaptive cognitive coping, mean (range) | 25.05 (16–59) | 25.12 (16–56) | 25.08 (16–59) | |
SD standard deviation, SES socioeconomic status, CD Crohn’s disease, UC ulcerative colitis, IBD-U inflammatory bowel disease unclassified, IQR interquartile range, HRQOL health-related quality of life, sPCDAI short Pediatric Crohn’s Disease Activity Index, PUCAI Pediatric Ulcerative Colitis Activity Index, SCARED Screen for Child Anxiety Related Emotional Disorders, CDI Child Depression Inventory, BDI-II Beck Depression Inventory, Second edition
aNot for all patients SES was available: CD N = 130, UC/IBD-U N = 112. Total group N = 242
bScored above cutoff for active disease on sPCDAI (≥ 10 points) or PUCAI (≥ 10 points)
cScored above cutoff on SCARED (anxiety), CDI (depression; 10–17 years) and/or BDI-II (depression 18–20 years)