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. Author manuscript; available in PMC: 2019 Jul 25.
Published in final edited form as: Clin Gastroenterol Hepatol. 2017 Jun 16;16(3):343–356.e3. doi: 10.1016/j.cgh.2017.06.016

Table 1.

Characteristics of the 17 population based cohorts included. Y, year.

Cohort Country Study period and follow-up UC Population References
Multicentric European (EC-IBD) Greece, Israel, Italy, Spain, Denmark, Netherlands, Norway Diagnosis between 1991 and 1993; follow-up ranging from 4 to 10 y 328 to 781 9,19, 25,38,57,64,73
Copenhagen County Denmark Diagnosis ranging from 1962 to 2005; follow-up ranging from 1 to 19 y 87 to 1160 10,23,24,26,43
North-Jutland County Denmark Diagnosis between 1978 and 2002; follow-up: 15 y 1575 30
IBSEN cohort Norway Diagnosis between 1990 and 1993; follow-up ranging from 5 to 20 y 328 to 519 15,18,36,37 54,56,58,65,68
Veszprem province Hungary Diagnosis between 1974 to 2012; follow-up ranging from 5 to 13 y 220 to 1060 13,27,33,44,74,76
Malmo Sweden Diagnosis between 1958 and 1982, median follow-up: 15 y 471 22,32,75
Stockholm county Sweden Diagnosis between 1955 and 1984; follow-up ranging from 13 to 16.5 y 1547 to 1586 17,28,47,63
Uppsala Region Sweden Cohort 1.Diagnosis between 1922 and 1983 Cohort 2. Diagnosis between 2005 and 2009; follow-up ranging from 1 to 11 y 496 to 3117 17,21,41,69
Florence Area Italia Diagnosis between 1978 and 1992; follow-up ranging from 11 to 15 y 689 48,60
Dutch IBD-South Limburg cohort The Netherlands Diagnosis between 1991 and 2010; follow up ranging from 3 to 17 y 368 to 1161 16,35,52,59
Area of Tampere University Hospital Finland Study period between 1986–2007 (diagnosis period not defined); follow-up of 13y 1254 46,61
Olmsted County USA Diagnosis ranging from 1940 to 2011; follow-up ranging from 1 to 21 y 63 to 462 12,40,45,49,62,66,67,71
Manitoba IBD cohort Canada Diagnosis after 1995; follow-up up to 12.3 y 45 to 158 51,55,61
Asia-Pacific Crohn’s and Colitis Epidemiology Study China, Hong Kong, Indonesia, Sri Lanka, Macau, Malaysia, Singapore, Thailand and Australia Diagnosis between 2011 and 2013; follow-up 1.5 y 222 14
Barwon area Australia Diagnosis between 2007–2008 and 2010–2013; follow-up of 1.5 y 96 11
ECCO-EPICOM cohort European Multicentric (14 countries, 31 centers) Diagnosis in 2011, follow-up of 1 y 575 to 710 20,53
Oberpfalz, Bavaria Germany Diagnosis between 2004 and 2009, follow-up > 1 y 90 70