Table 1.

Summary of self-report outcome measures.

Measure, outcome		Scoring
MPN SAFa
	Total symptom score	10 items (0-10 scale); total score range of 0-100 with higher score indicating worse symptom burden
	Fatigue	Item #1 from MPN SAF; 0-10. Scale with higher score indicating more fatigue
NIH PROMISb
	Anxiety	8-item measure with each question asked on a 1-5 scale; total cumulative raw score converted to standardized t-score; higher t-score represents more of the construct being measured
	Depression	8-item measure with each question asked on a 1-5 scale; total cumulative raw score converted to standardized t-score; higher t-score represents more of the construct being measured
	Pain intensity	3-item measure with each question asked on a 1-5 scale; total cumulative raw score converted to standardized t-score; higher t-score represents more of the construct being measured
	Sleep disturbance	8-item measure with each question asked on a 1-5 scale; total cumulative raw score converted to standardized t-score; higher t-score represents more of the construct being measured
	Sexual function	11-item measure with each question asked on a 1-5 scale; total cumulative raw score converted to standardized t-score; higher t-score represents more of the construct being measured
	Global health	10-item measure with each question asked on a 1-5 scale; total cumulative raw score converted to standardized t-score; higher t-score represents more of the construct being measured
	Quality of life	Item #2 on the Global Health scale; scored on a 1-5 scale with a higher raw score indicating a lower quality of life

^aMPN-SAF: MPN Symptom Assessment Form.

^bNIH PROMIS: National Institutes of Health Patient Reported Outcomes Measurement Information System.