Table 1.
Willingness to participate in data networks: Descriptive statistics and regression analyses.
| Characteristic | Frequency (n = 884) %/Mean (SD) | Univariable Weighted OLS b* (p value) | Multivariable Weighted Stepwise b* (p value) R2 = 0.426 | |
|---|---|---|---|---|
| Outcome variable | Willingness to participate in data networks (Range: 6–24) | 12.6 (4.8) | N/A | N/A |
| Demographics | Age | 52.9 (17.22) | 0.001 (0.99) | |
| Female | 49.9% | –0.050 (0.23) | ||
| White Non-Hispanic | 76.7% | 0.001 (0.98) | ||
| Annual Income <$50,000 | 35.5% | 0.065 (0.13) | ||
| Education | ||||
| B.A. or higher | 38.7% | REF | REF | |
| Some college | 27.7% | 0.122 (0.007) | 0.009 (0.773) | |
| High school or less | 33.6% | 0.182 (<0.001) | –0.110 (0.003) | |
| Self reported health (Range: 1 = Excellent; 5 = Poor) |
2.6 (0.94) | –0.076 (0.101) | ||
| Beliefs about the health system | Medical Deception Index (Range: 1 = low; 4 = high) |
1.75 (.65) | –0.178 (<0.001) | |
| Health System Trust Index (Range 4 = low trust; 16 = high trust) |
10.83 (2.08) | 0.402 (<0.001) | 0.094 (0.033) | |
| Provider Trust (Range: 1 = low trust; 4 = high trust) |
2.83 (.64) | 0.362 (<0.001) | ||
| Generalized Trust** | 39.37% | 0.357 (<0.001) | 0.081 (0.030) | |
| Obligation to Participate in Research** | 21.4% | 0.335 (<0.001) | 0.217 (<0.001) | |
| Altruism Index (Range: 1 = low altruism; 4 = high altruism) |
2.77 (.65) | 0.192 (<0.001) | ||
| Beliefs about insurance coverage and privacy | Privacy Index (Range: 1 = low privacy concerns; 4 = high privacy concerns) |
1.94 (.80) | –0.245 (<0.001) | –0.276 (0.002) |
| Privacy*My health insurer could use information against me (interaction term) | 0.298 (0.030) | |||
| My health insurer could use my information against me | 28.28% | –0.073 (0.115) | –0.063 (0.470) | |
| My health insurer could share my personal information with people who should not have it | 33.94% | –0.100 (0.024) | ||
| I am worried about not being able to pay medical bills | 25.23% | –0.085 (0.063) | ||
| I am confident my health insurance covers my medical needs | 49.89% | 0.264 (<0.001) | ||
| Beliefs about policy and governance | Confidence in current governance (index) (Range: 1 = Low confidence; 4 = high confidence) |
2.3 (0.74) | 0.556 (<0.001) | 0.393 (<0.001) |
| I would like to give permission for health information to be shared in a network** | 52.94% | 0.162 (<0.001) | 0.116 (0.001) | |
| I would like to be notified if my health information is shared** | 64.14% | –0.036 (0.426) | –0.090 (0.012) | |
** Statement is Very or Fairly True.
b*: Standardized regression coefficient.