Table 2:

Comparison of the caregivers’ responses to FS-IS questionnaire

	Non-Eosinophilic esophagitis controls (N=38)	Eosinophilic esophagitis (N=42)
In the past ONE month, as a result of your child’s feeding/swallowing problems, how often have you had problems carrying out your daily activities? [Mean ± SD]
It is hard for me to do my job, go to school, or work around the house	1.47 ± 0.11	1.40 ± 0.09
It is hard for me to get help from others because they are scared to feed or take care of my child.	1.36 ± 0.12	2.19 ± 0.24
It is hard for me to leave my child because I am scared to have other people feed or take care of my child.	1.51 ± 0.16	2.17 ± 0.23
It is hard for my family to make plans or go out to eat.	1.72 ± 0.21	2.78 ± 0.26
I am too tired to do the things I want or need to do.	1.55 ± 0.17	2.17 ± 0.20
In the past ONE month, as a result of your child’s feeding/swallowing problems, how often have you had problems with worrying? [Mean ± SD]
I worry about my child’s general health.	2.67 ± 0.23	3.50 ± 0.19
I worry that my child does not get enough to eat or drink.	2.01 ± 0.19	2.81 ± 0.20
I worry about how others will react to my child’s feeding/swallowing problems.	1.51 ± 0.18	2.76 ± 0.20*
I worry about how my child breathes when feeding and whether my child will choke.	1.25 ± 0.13	2.28 ± 0.16*
I worry that my child will never eat and drink like other children.	1.34 ± 0.15	2.57 ± 0.22*
I worry about whether I am doing enough to help with my child’s feeding/swallowing problems.	1.74 ± 0.22	3.04 ± 0.19*
I worry about how my child’s feeding/swallowing problems affect others in my family.	1.34 ± 0.16	2.30 ± 0.20*
In the past ONE month, as a result of your child’s feeding/swallowing problems, how often have you had problems feeding your child? [Mean ± SD]
It is hard to feed my child because it takes a long time to prepare liquids and foods the “right” way.	1.17 ± 0.09	2.12 ± 0.20*
It is hard to feed my child because I don’t know how to prepare liquids and foods.	1.08 ± 0.07	1.67 ± 0.18
It is hard to feed my child because others give my child liquids or foods that are not allowed.	1.05 ± 0.07	1.92 ± 0.18*
It is hard to feed my child because I don’t know how long these problems will last.	1.51 ± 0.17	2.11 ± 0.22
It is hard to feed my child because family members or professionals have different opinions about taking care of my child’s feeding/swallowing problems.	1.25 ± 0.13	2.14 ± 0.22*
It is hard to feed my child because I do not get enough information about how to get my child to eat and drink like other children.	1.17 ± 0.10	1.75 ± 0.17

^*t-Test p value ≤ 0.001