Table 1.
Distribution of key demographic and clinical characteristics of patients with SB according to age in the National Spina Bifida Patient Registry, 2009–15
| Age group (column %) |
|||||
|---|---|---|---|---|---|
| Variables | Overall patients (%) (N = 5209) |
5–11 (n = 1958) |
12–19 (n = 1881) |
20 and older (n = 1370) |
P-value* |
| Sex | |||||
| Male | 2434 (46.7) | 946 (48.3) | 906 (48.2) | 582 (42.5) | |
| Female | 2775 (53.3) | 1012 (51.7) | 975 (51.8) | 788 (57.5) | 0.0012 |
| Race/ethnicity | |||||
| Non-Hispanic white | 3310 (63.5) | 1118 (57.1) | 1124 (59.8) | 1068 (78.0) | |
| Non-Hispanic black | 377 (7.2) | 127 (6.5) | 154 (8.2) | 96 (7.0) | |
| Hispanic or Latino | 1130 (21.7) | 476 (24.3) | 494 (26.3) | 160 (11.7) | |
| Other | 376 (7.2) | 227 (11.6) | 103 (5.5) | 46 (3.4) | |
| Refused/unknown | 16 (0.3) | 10 (0.5) | 6 (0.3) | 0 | < 0.0001 |
| Spina bifida type | |||||
| Myelomeningocele | 4156 (79.8) | 1463 (74.7) | 1513 (80.4) | 1180 (86.1) | |
| Other diagnosis | 1053 (20.2) | 495 (25.3) | 368 (19.6) | 190 (13.9) | < 0.0001 |
| Level of lesion group | |||||
| Thoracic | 926 (17.8) | 181 (9.2) | 350 (18.6) | 395 (28.8) | |
| High-lumbar | 482 (9.3) | 149 (7.6) | 167 (8.9) | 166 (12.1) | |
| Mid-lumbar | 1413 (27.1) | 543 (27.7) | 496 (26.4) | 374 (27.3) | |
| Low-lumbar | 838 (16.1) | 370 (18.9) | 316 (16.8) | 152 (11.1) | |
| Sacral | 1550 (29.8) | 715 (36.5) | 552 (29.3) | 283 (20.7) | < 0.0001 |
| Health insurance (N = 5206) | |||||
| Any private | 2428 (46.6) | 961 (49.1) | 893 (47.5) | 574 (41.9) | |
| Non-private | 2778 (53.4) | 995 (50.9) | 987 (52.5) | 796 (58.1) | 0.0001 |
*
Chi-square test.