Table 1 -.
Demographic and clinical characteristics of SLE patients in the SLICC inception cohort at the time of their baseline visit and last follow-up visit.
| Variables | Baseline visit (n = 1683) | Last follow-up visit (n=1507) |
|---|---|---|
| Patient age (years) | ||
| Mean (S.D.) | 35.7 (13.4) | 42.8 (13.6) |
| Sex | ||
| Female, n (%) | 1493 (88.7) | 1337 (88.7) |
| Male, n (%) | 190 (11.3) | 170 (11.3) |
| Race/Ethnicity | ||
| Caucasian, n (%) | 834 (49.6) | 742 (49.2) |
| African ancestry, n (%) | 280 (16.6) | 246 (16.3) |
| Asian, n (%) | 260 (15.5) | 245 (16.3) |
| Hispanic, n (%) | 248 (14.7) | 222 (14.7) |
| Other, n (%) | 61 (3.6) | 52 (3.5) |
| Geographic location | ||
| United States, n (%) | 467 (27.7) | 377 (25.0) |
| Canada, n (%) | 395 (23.5) | 376 (25.0) |
| Mexico, n (%) | 197 (11.7) | 181 (12.0) |
| Europe, n (%) | 461 (27.4) | 419 (27.8) |
| Asia, n (%) | 163 (9.7) | 154 (10.2) |
| Education | ||
| Post-secondary education, n (%) | 847 (50.3) | 767 (50.9) |
| Missing, n (%) | 22 (1.3) | 20 (1.3) |
| SLE disease duration (years) | ||
| Median (I.Q.R.) | 1.2 (0.9–1.5) | 8.5 (5.6 – 11.3) |
| SLEDAI-2K | ||
| Median (I.Q.R.) | 2 (0–6) | 2 (0–4) |
| SLICC/ACR Damage Index (SDI) | ||
| SDI = 0, n (%) | 1270 (75.5) | 721 (47.8) |
| SF-36 Physical Component Score (PCS) | ||
| Median (I.Q.R.) | 41.7 (32.5–50.8) | 43.7 (32.6–52.6) |
| SF-36 Mental Component Score (MCS) | ||
| Median (I.Q.R.) | 48.8 (37.4–55.8) | 49.8 (39.3–56.1) |
Notes: S.D. = standard deviation; I.Q.R. = interquartile range; SLICC = Systemic Lupus International Collaborating Clinics; SLEDAI-2K = SLE disease activity index 2000; SF-36 = Short-Form 36