Table 1.
Demographics of the Qualitative Cohort as Compared to the Entire Cohort
| Demographic | Qualitative cohort (n=28) | Entire cohort (n=66) |
|---|---|---|
| Male sexa | 46 | 44 |
| Age (yr)a | 41.5 (32.2–47.2) | 40.0 (32.0–48.8) |
| Duration of UC (yr) | 5.5 (1.75–14.8) | 5.0 (1.0–11.0) |
| Worst ever extent of UC (Montreal classification)a,b | ||
| E1 | 14 | 21 |
| E2 | 46 | 41 |
| E3 | 36 | 35 |
| Unknown | 4 | 3 |
| Tertiary education | 68 | 59 |
| Smoking status | ||
| Never | 68 | 58 |
| Ex-smoker | 29 | 36 |
| Current | 3 | 6 |
| Prednisolone in last 12 months | ||
| ≤ 3 Months | 25 | 24 |
| > 3 Months | 25 | 18 |
| Hospital admissions in last 12 monthsc | 21 | 23 |
| Emergency department presentations in last 12 monthsc | 18 | 20 |
| Biologic use | 57 | 42 |
| Disease activity (SCCAI) at entrya | ||
| Remission | 39 | 38 |
| Mild | 36 | 42 |
| Moderate | 21 | 18 |
| Severe | 4 | 2 |
| IBD-control 8 at entry | 8.0 (4.8–14.0) | 9.0 (5.0–14.0) |
| Adherence to daily questionnairesa | 81 | 79 |
| Adherence to fortnightly questionnaires | 99 | 97 |
| Time spent on internet each day (hr) | 3.0 (0.0–4.0) | 3.0 (1.0–4.5) |
| Use of social media, such as Facebook, Twitter or Instagram | 78 | 83 |
| Withdrawn patients (day of withdrawal) | 2/28 (49, 91) | 9/66 (0, 0, 0, 1, 3, 15, 49, 56, 91) |
Values are presented as percent or median (interquartile range).
a
Items used for purposive sampling.
b
Montreal classification (E1: proctitis, E2: L-sided colitis, E3: extensive colitis),[45] unknown=answer given by patient and maximum extent unclear in medical notes.
c
Median=0.