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. 2019 May 31;17(3):365–374. doi: 10.5217/ir.2018.00173

Table 2.

Quotations to Illustrate Impact of TrueColours from a Patient Perspective

Theme Subtheme Interview excerpt
Awareness Prioritize (health) “…I think (it) made me more aware of it (health), instead of just brushing it to the side…” (Interview 22, F 18–29 yr)
Proactive disease management “…It made me stop and think because I thought that I was OK and I clearly wasn’t…” (Interview 23, F 30–39 yr)
Control Symptom monitoring “…It feels like I’ve got more control. I’ve got something to physically look at and tell me, it’s not in my head….” (Interview 10, M 30–39 yr)
Decision making Medications “…I think it’s making sure that people have the ability to have a look at their symptoms and see what’s working and what isn’t working so that a sensible decision can be made…” (Interview 28, F 60–65 yr)
Reassurance Alleviating psychological burden “…It becomes a bit more clinical to me which makes me feel better about it, because it is something that I can just submit an answer to. Once the questionnaire is done I don’t have to think about it…” (Interview 27, F 18–29 yr)
Normality of symptoms “…It was so reassuring to see that other patients must also feel anxious and tired, otherwise those questions would not be there? That has helped me to feel better about these things as I haven’t wanted to say anything about this in my appointments…” (Interview 10, M 30–39 yr)
Communication With IBD health professionals “…I would like my dashboard to be seen at consultations as it would give a true record of my symptoms and would help my specialist to see what was happening to me and what the best treatment might be…” (Interview 19, F 40–49 yr)
“…I’ve definitely been one of those people who finds that you get to the appointment and you’re like I’ve been pretty good, but actually you haven’t been feeling that great, so you are not really giving an accurate picture…” (Interview 11, F 18–29 yr)
With family members “…Over a length of time they (my family) get a good understanding than if I did nothing and I only went for my quarterly appointment…over 6 months of answering the same questions, all of this information goes into your partner’s mind which then feeds back with them…it’s good to know that they understand…It makes you talk…” (Interview 3, M 40–49 yr)
Feeling connected to the hospital “…I think the care that I have had has always been very good here but there’s a psychological aspect because it feels like you’re connecting with the hospital every day. It feels like you are more supported…” (Interview 27, F18–29 yr)
“…This whole system has made me just sort of feel like I’m getting more care from the hospital even though really I’m doing the work...” (Interview 7, M 30–39 yr)
Burden of treatment On the patient “I’d be happy to have this monitored remotely and not come in if I was well. Obviously, there’s time off work, travelling to come here…” (Interview 1, M 20–29 yr)
On the healthcare system “…Anything that can alleviate pressure on the NHS and help the doctors’ and the patient’s time is a good thing” (Interview 15, M 50–59 yr)

F, female; M, male; NHS, National Health Service.