HDQoL-Cs.
Please respond to each question – check the box that best reflects your opinions.
| 10 | 9 | 8 | 7 | 6 | 5 | 4 | 3 | 2 | 1 | ||
| Strongly agree | Strongly disagree | ||||||||||
| Section 1 | |||||||||||
| 1. | How satisfied are you with feeling a part of your social environment? | ||||||||||
| 2. | How satisfied are you with your relationships with your friends? | ||||||||||
| 3. | How satisfied are you with your psychological health? | ||||||||||
| 4. | How satisfied are you with what you have achieved in life? | ||||||||||
| 5. | How satisfied are you with family relationships? | ||||||||||
| 6. | How satisfied are you with your physical health? | ||||||||||
| 7. | How satisfied are you with the professional support you receive? | ||||||||||
| 8. | How satisfied are you with the medical treatment that your HD relative(s) receive(s)? | ||||||||||
| Section 2 | |||||||||||
| 1r. | I feel sad | ||||||||||
| 2r. | I feel depressed | ||||||||||
| 3r. | I feel a sense of grieving | ||||||||||
| 4r. | I feel a sense of loss | ||||||||||
| 5r. | I feel exhausted | ||||||||||
| 6r. | I feel stressed | ||||||||||
| 7r. | I feel a sense of anguish | ||||||||||
| 8r. | I feel full of fear | ||||||||||
| 9. | I feel that I can cope | ||||||||||
| 10. | I feel there is hope for the future | ||||||||||
| 11. | I feel satisfied with my overall QoL | ||||||||||
| 12. | I feel supported | ||||||||||
| 13. | I feel comforted by my beliefs (religious, philosophical, or spiritual) | ||||||||||
| 14. | I feel that my role as a carer is rewarding | ||||||||||
| 15. | I feel safe | ||||||||||
Scoring Key. Section 1. Satisfaction with life. Factor 1. Sum Questions 1–8 and calculate the mean. Section 2. Feelings about living with HD. Factor 1. Sum Questions 1–8 and calculate the mean. Factor 2. Sum Questions 9–15 and calculate the mean. Items with an r are reverse coded such that a score of 10 = 1, 9 = 2, 8 = 3, …, 1 = 10.