Table 2. . Sample questions to aid elicitation of medical and personal context.

1. What has been your experience with genetic testing? 2. What would the benefits of this genetic test (genome sequencing) be for you? 3. What questions do you have about this genetic test? 4. What are your concerns about this genetic test? 5. Have you already made a decision about having the test? How can I help you to decide? What additional information would help you make a decision? 6. How might you react to different kinds of results, for example, if you got a result indicating that the cause of your child’s condition wasn’t identified?