Table 2.
Participant Satisfaction With the Process and the Results Received by Group Randomized to, Demographic Characteristics, and Baseline Attitudes
| Satisfaction with process | Satisfaction with results | |||
|---|---|---|---|---|
| M(SD) | P | M(SD) | P | |
| Group randomized to | ||||
| Group (n = 2,805) | ||||
| None | 3.17 (2.95) | <.001 | 3.69 (3.02) | <.001 |
| All | 6.50 (2.42) | 6.09 (2.47) | ||
| Binary | 6.65 (2.51) | 6.06 (2.63) | ||
| Granular | 7.30 (2.20) | 7.00 (2.28) | ||
| Demographic characteristics | ||||
| gender (n = 2805) | ||||
| Male | 6.29 (2.78) | .753 | 5.98 (2.70) | .636 |
| Female | 6.35 (2.82) | 6.07 (2.77) | ||
| Age (n= 2752) | ||||
| <35 years | 6.46 (2.87) | .675 | 6.12 (2.89) | .958 |
| 35–39 years | 6.42 (2.72) | 6.05 (2.63) | ||
| 40–44 years | 6.35 (2.89) | 6.09 (2.84) | ||
| 45–49 years | 6.33 (2.75) | 6.05 (2.72) | ||
| 50+ years | 6.20 (2.89) | 5.99 (2.80) | ||
| Education (n= 2749) | ||||
| Some grade school | 5.88 (2.95) | .745 | 6.75 (2.19) | .462 |
| Some high school | 6.85 (2.27) | 7.00 (2.31) | ||
| Graduated high school | 6.33 (3.24) | 6.25 (2.90) | ||
| Some college | 6.45 (2.88) | 6.21 (2.81) | ||
| 2-or 4-year college graduate | 6.41 (2.76) | 6.08 (2.70) | ||
| Post college graduate course or degree | 6.26 (2.81) | 5.98 (2.81) | ||
| Hispanic | ||||
| No | 6.36 (2.81) | .219 | 6.09 (2.77) | .014 |
| Yes | 6.02 (2.83) | 5.42 (2.91) | ||
| Caucasian race (n=2805) | ||||
| No | 6.16 (2.76) | .265 | 5.72 (2.72) | .037 |
| Yes | 6.36 (2.83) | 6.10 (2.77) | ||
| African American race (n=2805) | ||||
| No | 6.34 (2.82) | .881 | 6.08 (2.76) | .144 |
| Yes | 6.29 (2.99) | 5.54 (2.99) | ||
| Asian race (n= 2805) | ||||
| No | 6.36 (2.83) | .218 | 6.08 (2.76) | .080 |
| Yes | 6.00 (2.61) | 5.59 (2.82) | ||
| Working in health care (n=2805) | ||||
| No | 6.40 (2.71) | .067 | 6.06 (2.73) | .875 |
| Yes | 6.17 (2.96) | 6.09 (2.82) | ||
| Baseline attitudes | ||||
| Previous research experience (n=2805) | ||||
| No | 6.37 (2.75) | .512 | 6.05 (2.73) | .691 |
| Yes | 6.30 (2.94) | 6.09 (2.82) | ||
| Previous genetic testing (n=2805) | ||||
| No | 6.40 (2.71) | .207 | 6.09 (2.71) | .533 |
| Yes | 6.26 (2.97) | 6.03 (2.85) | ||
| Child with genetic diagnosis (n=2805) | ||||
| No | 6.33 (2.82) | .602 | 6.03 (2.76) | .293 |
| Yes | 6.39 (2.83) | 6.16 (2.80) | ||
| Some reasons I might want information are… | ||||
| It might help me prepare for the future (n=2805) | ||||
| Noa | 5.66 (2.77) | <.001 | 5.57 (2.69) | .002 |
| Yesb | 6.42 (2.82) | 6.12 (2.77) | ||
| It might help me feel more in control over myfuture (n=2805) | ||||
| Noa | 5.75 (2.79) | <.001 | 5.66 (2.64) | <.001 |
| Yesb | 6.54 (2.80) | 6.20 (2.80) | ||
| It might prevent me from worrying (n=2805) | ||||
| Noa | 6.12 (2.76) | <.001 | 5.86 (2.68) | .026 |
| Yesb | 6.55 (2.86) | |||
| It might help me seek medical treatments for my child (n=2805) | ||||
| Noa | 5.82 (2.93) | .002 | 5.71 (2.78) | .026 |
| Yesb | 6.40 (2.80) | 6.10 (2.76) | ||
| Some reasons I might not want information are… | ||||
| I fear that I might find out something I don’t want to know (n=2805) | ||||
| Noa | 6.45 (2.91) | .025 | 6.12 (2.87) | .199 |
| Yesb | 6.21 (2.69) | 5.99 (2.62) | ||
| It might cause me anxiety (n=2805) | ||||
| Noa | 6.42 (2.97) | .237 | 6.06 (2.96) | .989 |
| Yesb | 6.29 (2.70) | 6.06 (2.61) | ||
| I think it’s the doctor’s job to deal with health information, not mine (n=2805) | ||||
| Noa | 6.34 (2.82) | .778 | 6.06 (279) | .414 |
| Yesb | 6.22 (2.61) | 6.41 (2.48) | ||
| Sometimes, ignorance is bliss (n=2805) | ||||
| Noa | 6.36 (2.85) | .389 | 6.07 (2.80) | .835 |
| Yesb | 6.23 (2.63) | 6.04 (2.55) | ||
| I find the information hard to understand (n=2805) | ||||
| Noa | 6.34 (2.84) | .670 | 6.06 (2.79) | .600 |
| Yesb | 6.43 (2.52) | 6.16(2.45) | ||
| Comfort | ||||
| Comfortable with the possibility of getting genetic research results about your child from a biobank study (n=2805) | ||||
| Noa | 5.75 (2.45) | <.001 | 5.57 (2.38) | <.001 |
| Yesb | 6.57 (2.92) | 6.25 (2.88) | ||
Note: The total number of respondents might be different for the rows of this table. They are based on the number of respondents who answered both questions and not every respondent answered every question.
a
”No” represents the combined response categories “neither agree nor disagree,” “disagree,” and “strongly disagree.”
b
”Yes” represents the combined response categories “agree” and “strongly agree”
c
”No” represents the combined response categories “neutral,” “somewhat uncomfortable,” and “very uncomfortable.”
d
”Yes” represents the combined response categories “somewhat comfortable” and “very comfortable”