TABLE 1.
Sex | n (%) |
Female | 15 (18%) |
Male | 68 (82%) |
Race° | n (%) |
Single Race | 72 (87%) |
American Indian/Alaskan Native | 0 (0%) |
Asian | 4 (5%) |
Black/African American | 6 (7%) |
Other | 10 (12%) |
White/Caucasian | 52 (63%) |
Multiple Races | 11 (13%) |
Black and American Indian/Alaskan | 1 (1%) |
Black and White | 5 (6%) |
White and American Indian/Alaskan | 1 (1%) |
White and Asian | 1 (1%) |
White and Black and American Indian/Alaskan | 1 (1%) |
White and Other | 2 (2%) |
Ethnicity | n (%) |
Hispanic | 16 (19%) |
Non-Hispanic | 66 (80%) |
Unknown | 1 (1%) |
Age | Mean (SD) |
Age at diagnosis (years) | 3.2 (1.6) |
Age at visit (years) | 7.4 (1.6) |
Income∧ | Mean (SD), Median |
Income of participant’s zip code | $57.7K ($19.8K), $55.6 |
Cognitive Function | N, Mean (SD) |
Non-verbal cognitive score | 50, 88 (19) |
ABC-C#Checklist Subscale Score (n = 81) | Mean (SD) |
Irritability | 13.5 (9.9) |
Withdrawal | 11.2 (7.8) |
Stereotypy | 5.5 (4.6) |
Hyperactivity | 15.3 (8.8) |
Inappropriate Speech | 4.7 (3.4) |
Genetic Testing | N (%) |
Had Genetic Testing Reported | 58 (70%) |
Known Genetic Syndrome | 1 (%) |
Variant of Unknown Significance | 7 (%) |
∗Participants could endorse any applicable race; all responses tallied. #Aberrant Behavior Checklist – Community. ∧Based on U.S. Census data from the 2012 Census.