Table 1:

Summary of the Large National Databases Currently Available for Sarcoma Research

Database Name	Description/purpose	Method of Data Collection	Accessibility	Linkage to other databases	No. of publications	Years of data currently available
Surveillance, Epidemiology, and End Results Program Database (SEER)	Develop and report national estimates of cancer incidence and mortality Monitoring annual cancer incidence trends Providing continuous information on trends in therapy and changes in patient survival	Manual chart abstraction by trained registrars	Deidentified data are publicly available	Medicare database Medicare Health Outcomes Sruvey Consumer Assessment of Healthcare Providers and Systems	302	1975–2015
National Program of Cancer Registries (NPCR)	Same purpose as SEER but in different states with separate submission dates	Manual chart abstraction by trained registrars	Deidentified data are publicly available	Same as SEER	5	2001–2015
National Cancer Database (NCDB)	Analyze and track treatments and outcomes for patients with cancer diagnoses Provide performance metrics for participating centers	Manual chart abstraction by trained registrars	Investigators in participating organizations must apply for deidentified participant user files	Claims data	25	2003–2014