Cost of follow-up |
“I think that [follow-up] needs to be reimbursed in some way because we can’t just keep paying for it over the years. It’s not cost effective.” |
Staffing |
“We…added another person because it was just too much. We only had one, I was the only living donor coordinator and it was just too much, you know? It was too much volume to do the follow-up too.” |
Meeting all OPTN/UNOS requirements |
“…it’s really hard for [patients] to comply in the 60-day window that UNOS gives us and I think that’s the most frustrating part…” |
International/out of town donors |
“I think it’s…hard when people live in foreign countries or very far away from the transplant program to deliver good follow-up care because then you’re at the mercy of another provider.” |
Obtaining lab values |
“The biggest challenge would be them physically getting their blood drawn and their blood pressure checked.” |
Lack of donor engagement |
“How do you get [donors] to see that this is a priority for them, particularly the follow-up, and…still continuing to have routine medical care after donation?” |
Lack of long-term data collection |
“…two years is really a token effort to try and detect any sort of meaningful consequences of living donation…” |