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. Author manuscript; available in PMC: 2020 Aug 1.
Published in final edited form as: Clin Transplant. 2019 Jul 1;33(8):e13637. doi: 10.1111/ctr.13637

Table 3:

Challenges currently faced in obtaining LKD follow-up.

Challenge Representative Quote
Cost of follow-up “I think that [follow-up] needs to be reimbursed in some way because we can’t just keep paying for it over the years. It’s not cost effective.”
Staffing “We…added another person because it was just too much. We only had one, I was the only living donor coordinator and it was just too much, you know? It was too much volume to do the follow-up too.”
Meeting all OPTN/UNOS requirements “…it’s really hard for [patients] to comply in the 60-day window that UNOS gives us and I think that’s the most frustrating part…”
International/out of town donors “I think it’s…hard when people live in foreign countries or very far away from the transplant program to deliver good follow-up care because then you’re at the mercy of another provider.”
Obtaining lab values “The biggest challenge would be them physically getting their blood drawn and their blood pressure checked.”
Lack of donor engagement “How do you get [donors] to see that this is a priority for them, particularly the follow-up, and…still continuing to have routine medical care after donation?”
Lack of long-term data collection “…two years is really a token effort to try and detect any sort of meaningful consequences of living donation…”