Table 2.
Illustration of individual re-ranking after discussion: Preferred outcome domains of participants in question 1 (n = 16).
| Category / Items | Participants 1–16 | Weighted mean score a | |||||||||||||||
|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|
| Overall wellbeing | P1 | P2 | P3 | P4 | P5 | P6 | P7 | P8 | P9 | P10 | P11 | P12 | P13 | P14 | P15 | P16 | |
| Overall wellbeing and quality of life | 3 | 3 | 5 | 5 | 5 | 5 | 5 | 5 | 3 | 5 | 2.75 | ||||||
| Personal perception of wellbeing | 5 | 0.31 | |||||||||||||||
| Cognitive dysfunction | 4 | 0.25 | |||||||||||||||
| Physical wellbeing | P1 | P2 | P3 | P4 | P5 | P6 | P7 | P8 | P9 | P10 | P11 | P12 | P13 | P14 | P15 | P16 | |
| Pain and pain reduction of two points on a VAS/NRS 0–10 | 5 | 5 | 5 | 5 | 4 | 5 | 4 | 2.06 | |||||||||
| Breathlessness and Breathlessness reduction of two points on a VAS/NRS 0–10 | 5 | 5 | 4 | 5 | 1.18 | ||||||||||||
| Fatigue | 4 | 5 | 5 | 4 | 1.13 | ||||||||||||
| Nausea and vomiting | 3 | 0.18 | |||||||||||||||
| Physical symptoms in general | 5 | 4 | 5 | 4 | 5 | 4 | 1.68 | ||||||||||
| Emotional Wellbeing | P1 | P2 | P3 | P4 | P5 | P6 | P7 | P8 | P9 | P10 | P11 | P12 | P13 | P14 | P15 | P16 | |
| Overall emotions including loneliness | 5 | 5 | 4 | 5 | 4 | 5 | 1.75 | ||||||||||
| Feeling safe in institution | 4 | 0.25 | |||||||||||||||
| Depression/psychological care | 3 | 4 | 0.43 | ||||||||||||||
| Social and Family Wellbeing | P1 | P2 | P3 | P4 | P5 | P6 | P7 | P8 | P9 | P10 | P11 | P12 | P13 | P14 | P15 | P16 | |
| Family anxiety and wellbeing | 5 | 2 | 5 | 0.75 | |||||||||||||
| Family carer burden | 4 | 5 | 4 | 4 | 1.06 | ||||||||||||
| Social care | 2 | 0.13 | |||||||||||||||
| Relationship with family including sharing feelings | 3 | 1 | 0.25 | ||||||||||||||
| Spiritual wellbeing | P1 | P2 | P3 | P4 | P5 | P6 | P7 | P8 | P9 | P10 | P11 | P12 | P13 | P14 | P15 | P16 | |
| Feeling at peace | 2 | 2 | 0.25 | ||||||||||||||
| Information and preferences | P1 | P2 | P3 | P4 | P5 | P6 | P7 | P8 | P9 | P10 | P11 | P12 | P13 | P14 | P15 | P16 | |
| Communication (feeling listened to, shared decision making) | 4 | 5 | 5 | 4 | 1.13 | ||||||||||||
| Place of care – choice of place of care – treatment preferences | 5 | 3 | 0.5 | ||||||||||||||
| Information needs and preferences (patient and family) | 5 | 5 | 5 | 4 | 5 | 5 | 2 | 2 | 2.06 | ||||||||
| Adverse Events and Staff distress | P1 | P2 | P3 | P4 | P5 | P6 | P7 | P8 | P9 | P10 | P11 | P12 | P13 | P14 | P15 | P16 | |
| Adverse events including medication adherence and pressure ulcer | 1 | 4 | 4 | 0.56 | |||||||||||||
| Length of unstable phase | 4 | 4 | 4 | 5 | 5 | 5 | 1.69 | ||||||||||
| Timing and duration of intervention | 4 | 0.25 | |||||||||||||||
| Staff distress | 1 | 0.06 | |||||||||||||||
VAS: visual analog scale; NRS: numerical rating scale.
a
Ranks are weighted (rank 1 = 5 points, rank 2 = 4 points, rank 3 = 3 points etc.). The mean score is calculated by dividing the weighted sum with the total number of participants (n = 16).