TABLE 1.
Caregiver and Provider Demographics
| Caregivers | Providers | |
|---|---|---|
| Age, y, No. (%)a | ||
| ≤35 | 7 (41) | 7 (32) |
| 36–45 | 6 (35) | 7 (32) |
| >45 | 4 (24) | 8 (36) |
| Female sex, No. (%)a | 16 (94) | 17 (77) |
| Race and/or ethnicity, No. (%)a | ||
| White | 14 (82) | — |
| Hispanic | 2 (12) | — |
| Caregiver education, No. (%)a | ||
| High school graduate or GED | 3 (18) | — |
| Some college or 2-y degree | 6 (35) | — |
| 4-y college degree | 4 (24) | — |
| >4 y college | 4 (24) | — |
| Type of provider, No. (%)a | ||
| Complex care provider | — | 2 (9) |
| PCP | — | 6 (27) |
| ED physician | — | 4 (18) |
| Inpatient pediatric resident | — | 1 (5) |
| Subspecialty physician | — | 3 (14) |
| ED nurse | — | 1 (5) |
| Inpatient floor nurse | — | 1 (5) |
| School nurse | — | 1 (5) |
| Home health nurse | — | 1 (5) |
| Care coordinator | — | 1 (5) |
| Case manager | — | 1 (5) |
| Clinic location of provider, No. (%)a | ||
| Main hospital | — | 13 (59) |
| Regional | — | 8 (36) |
| Out of state | — | 1 (5) |
| Provider y of practice, No. (%)a | ||
| 0–5 | — | 7 (32) |
| 6–10 | — | 5 (23) |
| 11–20 | — | 4 (18) |
| >20 | — | 6 (27) |
| Mean provider comfort level caring for CMC (range)b | — | 8.0 (3–10) |
| Provider uses EHR at main practice location,No. (%)a | — | 19 (86) |
| Provider has access to main hospital EHR, No. (%)a | — | 18 (82) |
| Provider comfort level using EHR, mean (range)b | — | 8.9 (6–10) |
| Participant owns a smartphone, No. (%)a | 16 (94) | 22 (100) |
| Participant comfort level with smartphone app usage, mean (range)b | 8.5 (2–10) | 8.3 (2–10) |
| Caregiver endorsed having a care plan for the child, No. (%)a | 8 (47) | — |
GED, general equivalency diploma. —, not applicable.
a
Sum may not equal 100% due to rounding or participant preferred not to answer survey item.
b
Response options were on a scale from 1 to 10, with higher ranking indicating a higher comfort level.