Table 2.
Barriers reported by providers
Barriers | Provider quotes |
---|---|
Financial and insurance issues | “…it would be great if every patient…not even just uninsured patients, but even some patients that have insurance -if we [comprehensive Cancer Center] took everyone’s insurance.But, unfortunately. [we] could do better.to be on more health care plans…” (Male, MD) |
Psychological needs and symptoms | “We have some patients that need just true psychological or psychiatric care, and getting them that kind of help, that level of help promptly is really hard.” (Female, MD) |
Unprepared for the unexpected | “I think the usual shock and denial when you are diagnosed with cancer I think they are…in that stage of.life where they have started college or got a job. When they do accept.they have cancer, there is this feeling. ‘I am not gonna tell anybody. ..I’ll move on.’ There’s not an understanding of what the whole cancer picture could look like.” (Female, Social Worker) |
Fertility concerns | “Some patients need to start treatment [for cancer] yesterday. We see a ton of patients on a daily basis, and so I can understand why there might be some patients falling through the cracks and not aware of what their fertility preservation choices are.” (Male, Financial Analyst) |
Balancing medical appointments with the rest of life | “For. the young adults who are kind of new to the system.a lot of them are either.early in their working careers and probably have young families. And so,.financial issues, family issues, childcare issues, are. definitely kind of the immediate concerns.how do you get time off to come to appointments and all that.” (Male, MD) |
Parents as protectors | “they have [AYA] just become independent and now their parents are hovering.the physician will often speak with the parents, which is a problem. In some ways, there’s ambivalence there for the young adult. They do want to be taken care of. This is a nightmare and they regress back to this horrible place of being a baby who needs to be taken care of.” (Female, Social Worker) |