Table 1.
Participant Characteristics
| Participated in at least 1 round % (n = 95) | Participated in Round 1 (n = 88) | Participated in Round 2 (either viewed or posted) (n = 74) | Participated in Round 3 (n = 56) | |
|---|---|---|---|---|
| Participant Type | ||||
| Caregiver | 71 (75%) | 65 (74%) | 58 (78%) | 43 (77%) |
| Individual with DMD | 24 (25%) | 23 (26%) | 16 (22%) | 13 (23%) |
| Gender | ||||
| Female | 59 (62%) | 53 (60%) | 47 (64%) | 35 (63%) |
| Male | 36 (38%) | 35 (40%) | 27 (36%) | 21 (37%) |
| Hispanic/Latino/Spanisha | ||||
| Yes | 4 (4%) | 2 (2%) | 3 (4%) | 1 (2%) |
| No | 90 (96%) | 85 (98%) | 70 (96%) | 54 (98%) |
| Race | ||||
| White | 86 (91%) | 82 (93%) | 67 (91%) | 52 (93%) |
| Black/African American | 1 (1%) | 1 (1%) | 1 (1%) | 0 (0%) |
| Asian | 4 (4%) | 3 (3%) | 4 (5%) | 4 (7%) |
| Multi-race | 1 (1%) | 0 (0%) | 1 (1%) | 0 (0%) |
| Other | 3 (3%) | 2 (2%) | 1 (1%) | 0 (0%) |
| How far do you usually travel to receive neuromuscular care?a | ||||
| < 50 miles | 38 (41%) | 37 (44%) | 30 (41%) | 25 (46%) |
| 50–99 miles | 22 (24%) | 20 (24%) | 16 (22%) | 12 (22%) |
| 100–249 miles | 17 (19%) | 13 (15%) | 14 (19%) | 8 (15%) |
| ≥ 250 miles | 15 (16%) | 15 (18%) | 13 (18%) | 9 (17%) |
There were no statistically significant differences between participants and non-participants in different rounds as measured by Fisher’s exact test
a Not all participants provided responses to this question