Table 4.
Benefits of a peer mentoring program for adolescents with hemophilia.
| Benefits | Exemplar quotes | |
| Sense of community |
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Feeling like they are not alone in their disease |
I think [the mentorship sessions] would make kids more open about hemophilia...talk about it, talk to their friends about it. Making them feel like they’re not alone you could say like they’re not the only ones. Inclusion. [Age 20]
People really having a sense of community about their hemophilia because alone we are just hemophiliacs but together we are a social group, we are a community that’s helping one another. [Age 14] |
| Sense of hope |
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|
Mentor success in adulthood | They’ll also feel like there’s someone in the same boat as me...cause you almost feel isolated, when no one else has it...So if they have someone to talk to...[they look] forward to the future and it’s not just going to be a boring future. [Age 17] |
| Opportunity for discussion |
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|
Speak about hemophilia from a nonmedical perspective; focus on aspects of daily life | Well, I would, like, learn a lot through someone that is more skilled, who would understand more than I do. [Age 12] |
| Ease of dialogue |
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|
Extension of attending hemophilia summer camp; easier to speak to someone of a similar age and diagnosis | Definitely just someone to talk to about hemophilia would awesome because you can just talk to them about things in your life that are affected by hemophilia...you can relate to them because they’ve gone through what you’ve been through. [Age 14] |