Table 2.
Domain measured | Outcome measure |
Self-report measures used for clinical service and evaluation (CYPHP Health Check) | |
Asthma severity | Asthma Control Test |
Eczema severity | Patient-Oriented Eczema Measure |
Constipation severity | Bristol Stool Chart |
Bespoke constipation questionnaire | |
Epilepsy severity | Bespoke epilepsy questionnaire |
Mental health concerns | Strengths and Difficulties Questionnaire |
Social context | Bespoke social screen questionnaire
|
Self-report measures used for evaluation | |
Primary outcome: health-related quality of life | Paediatric Quality of Life Inventory |
Economic data on child quality of life | Child Health Utility 9D |
Parental well-being | Warwick-Edinburgh Mental Well-Being Scale |
Health service use (individual-level data linked with consent) | |
Rate of non-elective admissions | |
General practice attendances | |
Emergency department attendances | |
Outpatient appointment referrals | |
Outpatient appointment attendances | |
Ambulatory care sensitive admissions | |
Proportion of non-elective admissions that are ambulatory care sensitive | |
Rate (sum per patient-year) of non-elective admissions and outpatient appointment referrals |
CYPHP, Children and Young People’s Health Partnership.