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. 2019 Sep 3;9(8):e027301. doi: 10.1136/bmjopen-2018-027301

Table 2.

Tracer condition outcome measures used as part of clinical service and study evaluation

Domain measured Outcome measure
Self-report measures used for clinical service and evaluation (CYPHP Health Check)
Asthma severity Asthma Control Test
Eczema severity Patient-Oriented Eczema Measure
Constipation severity Bristol Stool Chart
Bespoke constipation questionnaire
Epilepsy severity Bespoke epilepsy questionnaire
Mental health concerns Strengths and Difficulties Questionnaire
Social context Bespoke social screen questionnaire
  • Social deprivation (three items)

  • Parent mental health (one item)

  • Employment (one item)

  • Ethnicity (one item)

Self-report measures used for evaluation
Primary outcome: health-related quality of life Paediatric Quality of Life Inventory
Economic data on child quality of life Child Health Utility 9D
Parental well-being Warwick-Edinburgh Mental Well-Being Scale
Health service use (individual-level data linked with consent)
Rate of non-elective admissions
General practice attendances
Emergency department attendances
Outpatient appointment referrals
Outpatient appointment attendances
Ambulatory care sensitive admissions
Proportion of non-elective admissions that are ambulatory care sensitive
Rate (sum per patient-year) of non-elective admissions and outpatient appointment referrals

CYPHP, Children and Young People’s Health Partnership.