Table 4.

Advantages and disadvantages of predisclosure education by web or disclosure of results by web

Predisclosure education and informed consent by web
What do you feel would be the advantages to having genetic counseling by a website where you can choose the information you want, rather than with a person?	N = 59a
	N (%)
No advantages	22 (37)
Convenience	14 (24)
Reduce time commitment	8 (14)
Can self‐select information	6 (10)
Can provide more information	5 (8)
Permits privacy and/or anonymity	4 (7)
One can control the pace of the session	1 (2)
Would be useful after speaking with a person (but not as an alternative)	1 (2)
What do you feel would be the disadvantages to having genetic counseling by a web‐site where you can choose the information you want, rather than with a person?	N = 62b
	N (%)
No disadvantages	1 (2)
No one to ask/answer my questions	22 (35)
Risk of misunderstanding	20 (32)
Impersonal, lack of personal touch, face‐to‐face communication	17 (27)
No one to make sure I understand or to explain things	5 (8)
May be too generic and not individualized	2 (3)
May not be proficient with technology	2 (3)
Might result in GC follow‐up session anyway	1 (2)
No one to help me if I get upset/give me support	1 (2)
Time	1 (2)
Having a session with GC will help me prioritize this process	1 (2)
Disclosure of genetic research results by web
What do you feel would be the advantages to having genetic counseling disclosure session by a website where you can choose the information you want, rather than with a person?	N = 62c
	N (%)
No advantages	22 (36)
Convenience	14 (23)
Reduce time commitment	6 (10)
Can self‐select information	6 (10)
One can control the pace of the session	5 (8)
Permits privacy and/or anonymity	3 (5)
Available as a resource to revisit	3 (5)
Better than no counseling	1 (2)
Can provide more information	1 (2)
What do you feel would be the disadvantages to having genetic counseling disclosure session by a website where you can choose the information you want, rather than with a person?	N = 59d
	N (%)
No disadvantage	9 (15)
Risk of misunderstanding	15 (25)
Impersonal, lack of personal touch, fact‐to‐face communication	15 (25)
No one to ask/answer my questions	9 (15)
No one to make sure I understand or explain things	7 (12)
Not acceptable/must be in‐person	3 (5)
No one to help me if I get upset/give me support	2 (3)
Too much information	2 (3)
Generally may not work for some people	1 (2)
May not be proficient with technology	1 (2)

^a14 did not answer the question and 6 reported they were unsure, and 5 indicated that they would prefer a person (removed for not reporting an advantage).

^bexcluded 15 who did not answer this item and 2 reported they were unsure.

^c11 did not answer the question, (removed for not reporting an advantage).

^d14 did not answer the question, 2 removed for not reporting a disadvantage.