Table 3a:

Examples of narrative responses regarding benefits and concerns of being in genetic studies in general

Theme	Response
Benefits	“Could help future generations; spare children/grandchildren having to deal with mental or physical illnesses.”
	“They’d be able to find out what’s wrong with me, how to treat it, what meds I’d use.’’
	“Long term goal find a genetic cure or also finding more determining factors. Free screening and results; free medical attention.”
	“No benefit for the person but may help someone down the road; it’s altruistic.”
	“Without participants, research won’t advance. Money to participate is beneficial, as well as feeling you’re doing something worth while.”
Concerns	“Misuse of information; I have nothing to hide, but it might be a concern for people with illness because of insurance.”
	“Employment discrimination against my grown child because the employer could see that the father has diabetes from the genetic study.”