Table 3b:

Examples of narrative responses regarding perceived safeguards of genetic research

Theme	Response
Safeguards	“They use codes for information so person’s identity is unknown; research done consistently with each person so results are accurate (sense of continuity between personnel and participants).”
	“They have to go by NIMH guidelines (somebody governs the research process).”
	“They have a consent form; give all participants [the] opportunity to stop at any time. Would provide medical care directly for any research injury.”