Table 1.
Participant Characteristics (N = 120).
| Characteristic | N | % | Mean | SD |
|---|---|---|---|---|
| Female sex | 97 | 80.8 | ||
| Relationship to child | ||||
| Mother | 95 | 79.2 | ||
| Father | 23 | 19.2 | ||
| Grandparent | 2 | 1.6 | ||
| Has surviving child | 109 | 90.8 | ||
| Racea | ||||
| Caucasian | 113 | 94.2 | ||
| Non-Caucasian | 7 | 5.0 | ||
| Ethnicityb | ||||
| Hispanic/Latino/a | 3 | 2.5 | ||
| Not Hispanic/Latino/a | 106 | 88.3 | ||
| Unknown | 6 | 5.0 | ||
| Caregiver age (years)a | 48.9 | 8.0 | ||
| Child’s diagnosis | ||||
| Brain/spinal tumor | 37 | 30.8 | ||
| Blood cancer | 35 | 29.2 | ||
| Sarcoma | 32 | 26.7 | ||
| Neuroblastoma | 6 | 5.0 | ||
| Otherc | 10 | 8.3 | ||
| Time period between child’s diagnosis and death | ||||
| Under 1 year | 29 | 24.2 | ||
| 1-2 years | 46 | 38.3 | ||
| 3-5 years | 31 | 25.8 | ||
| Over 5 years | 14 | 11.7 | ||
| Child in remission prior to death | 63 | 52.5 | ||
| Child’s age at death (years) | 12.9 | 7.3 | ||
| Child’s place of deatha | ||||
| Home | 58 | 48.3 | ||
| Hospital | 53 | 44.2 | ||
| Hospice facility | 6 | 5.0 | ||
| Other | 3 | 2.5 | ||
a
n = 119. b n = 115. c Includes retinoblastoma, rhabdoid tumors, ovarian cancer, rectal cancer, duodenal cancer, thyroid cancer, epithelial parotid, Wilms tumor, and unknown.