Table 2.

The FSHD-COM

Region	ITEM	References
Leg function	Sit to stand without hands	[51–53]
	6 Minute Walk	[54–56]
	Self-selected gait speed	[57–59]
	Go 30′	[49, 55, 60]
	Ascend/ descend stairs	[49, 55, 60]
Shoulder / arm function	Shoulder Abduction (R/L)	[18, 60, 61]
	Shoulder Forward Flexion (R/L)	[18, 60, 61]
	Elbow Flexion (R/L)	[18, 60, 61]
	Don/doff Coat	[62]
Trunk function	Pick up a penny from floor	[62]
	Sit up with feet held	[4]
	Supine to sit	[4]
Hand function	Hand Grip Force Men	[49, 63–65]
	Hand Grip Force Women	[49, 63–65]
Balance	TUG: Timed up and Go	[66, 67]

The FSHD-COM is an 18-item instrument comprised of individually validated motor tasks. More weight is given to leg function and shoulder/arm function which are the two most frequently cited areas of patient concern (table modified from Eichinger et al. [21])