Table 3.
Baseline characteristics of baseline and follow-up survey respondents by engagement cluster (N=329).
| Baseline characteristic | Engagement cluster, n (%) | ||||
| Low (n=18) | Medium (n=34) | High (n=114) | Very high (n=163) | ||
| Age (years) | |||||
|
|
<40 | 1 (5) | 3 (8) | 14 (12.3) | 8 (4.9) |
|
|
40-49 | 3 (16) | 7 (20) | 17 (14.9) | 18 (11.0) |
|
|
50-59 | 6 (33) | 6 (17) | 36 (31.6) | 46 (28.2) |
|
|
60-69 | 6 (33) | 15 (44) | 33 (28.9) | 64 (39.3) |
|
|
>70 | 2 (11) | 3 (8) | 14 (12.3) | 27 (16.6) |
| Gender | |||||
|
|
Male | 7 (38) | 12 (35) | 19 (16.7) | 39 (23.9) |
|
|
Female | 11 (61) | 22 (64) | 95 (83.3) | 124 (76.1) |
| Ethnicity | |||||
|
|
White | 17 (94) | 32 (94) | 101 (88.6) | 155 (95.7) |
|
|
Asian | 1 (5) | 1 (2) | 2 (1.8) | 2 (1.2) |
|
|
Black/African/Caribbean | 0 (0) | 1 (2) | 6 (0.0) | 0 (0.6) |
|
|
Latino | 0 (0) | 0 (0) | 0 (5.3) | 1 (0.0) |
|
|
Multiple ethnicities | 0 (0) | 0 (0) | 5 (4.4) | 4 (2.5) |
|
|
Missing | 0 | 0 | 0 | 1 (0.6) |
| Employment status | |||||
|
|
Employed | 3 (16) | 8 (23) | 46 (40.4) | 40 (24.7) |
|
|
On sick leave, unable to work | 2 (11) | 4 (11) | 13 (11.4) | 18 (11.1) |
|
|
Retired | 9 (50) | 17 (50) | 44 3(8.6) | 90 (55.6) |
|
|
Student | 1 (5) | 1 (2) | 1 (0.9) | 0 (0.0) |
|
|
Unemployed | 3 (16) | 4 (11) | 10 (8.8) | 14 (8.6) |
|
|
Missing | 0 | 0 | 0 | 1 (0.6) |
| Education | |||||
|
|
Primary school | 1 (5) | 1 (2) | 3 (2.6) | 0 (0.0) |
|
|
Secondary school | 10 (55) | 19 (55) | 54 (47.4) | 73 (45.1) |
|
|
University degree | 5 (27) | 12 (35) | 41 (36.0) | 58 (35.8) |
|
|
Postgraduate degree | 2 (11) | 2 (5) | 16 (14.0) | 31 (19.1) |
|
|
Missing | 0 | 0 | 0 | 1 (0.6) |
| Comorbidities | |||||
|
|
None | 4 (22) | 18 (52) | 46 (41.1) | 69 (42.6) |
|
|
1 | 4 (22) | 5 (14) | 37 (33.0) | 57 (35.2) |
|
|
≥2 | 10 (55) | 11 (32) | 29 (25.9) | 36 (22.2) |
|
|
Missing | 0 | 0 | 2 (1.8) | 1 (0.6) |
| Community | |||||
|
|
Cardiovascular | 2 (11) | 3 (8) | 14 (12.3) | 22 (13.5) |
|
|
Respiratory | 1 (5) | 1 (2) | 4 (3.5) | 6 (3.7) |
|
|
Cancers | 2 (11) | 4 (11) | 8 (7.0) | 22 (13.5) |
|
|
Mental health | 5 (27) | 1 (2) | 2 (1.8) | 2 (1.2) |
|
|
Digestive system | 4 (22) | 5 (14) | 12 (10.5) | 22 (13.5) |
|
|
Endocrine | 4 (22) | 7 (20) | 21 (18.4) | 35 (21.5) |
|
|
Genitourinary | 5 (27) | 2 (5) | 11 (9.6) | 3 (1.8) |
|
|
Musculoskeletal | 20 (30) | 10 (29) | 34 (29.8) | 39 (23.9) |
|
|
Nervous system | 1 (1) | 1 (2) | 1 (0.9) | 2 (1.2) |
|
|
Blood disorders | 1 (1) | 1 (1) | 6 (5.3) | 10 (6.1) |
|
|
Reproductive | 0 (0) | 1 (0) | 1 (0.9) | 0 (0.0) |
| Time since diagnosis (years) | |||||
|
|
<1 | 3 (18) | 8 (23) | 40 (35.4) | 62 (39.0) |
|
|
1-6 | 5 (31) | 12 (35) | 32 (28.3) | 56 (35.2) |
|
|
≥7 | 8 (50) | 14 (41) | 41 (36.3) | 41 (25.8) |
|
|
Missing | 2 (11.1) | 0 | 1 (0.9) | 4 (2.5) |