Table 3. What information should be provided to participants/donors in the IC?
In your opinion, what information should be provided to participants/donors in the IC? | Should be provided in the IC | Is not essential in the IC | I don’t know | |
---|---|---|---|---|
The purpose and (future) objectives of the associated research | n | 184 | 32 | 1 |
% | 84.8% | 14.7% | 0.5% | |
Possibility of re-contact by researchers for additional data/sampling | n | 175 | 41 | 2 |
% | 80.3% | 18.8% | 0.9% | |
Possibility of returning individual research results | n | 150 | 60 | 7 |
% | 69.1% | 27.6% | 3.2% | |
Sharing data/samples with other non-commercial research partners | n | 194 | 17 | 4 |
% | 90.2% | 7.9% | 1.9% | |
Sharing data/samples with commercial and/or health industry partners | n | 181 | 24 | 11 |
% | 83.8% | 11.1% | 5.1% | |
Sharing data/samples with parties in other EU countries | n | 172 | 36 | 10 |
% | 78.9% | 16.5% | 4.6% | |
Sharing data/samples with parties in non-EU countries | n | 169 | 39 | 11 |
% | 77.2% | 17.8% | 5.0% |