Table 1.
Demographic characteristics of sample (n=44)
| AYA (n=14) | Mothers (n=19) |
Fathers (n=11) | ||||
|---|---|---|---|---|---|---|
| Variable | n | % | n | % | n | % |
| Marital status | ||||||
| Engaged/Married | - | - | 14 | 73.7 | 7 | 63.6 |
| Single | 11 | 78.6 | 2 | 10.5 | 2 | 18.2 |
| In a serious relationship | 3 | 21.4 | 1 | 5.3 | - | - |
| Separated/Divorced | - | - | 2 | 10.5 | 2 | 18.2 |
| Widowed | - | - | - | - | - | - |
| Race | ||||||
| White | 13 | 92.9 | 18 | 94.7 | 9 | 81.8 |
| Black or African American | 1 | 7.1 | 1 | 5.3 | - | - |
| American Indian or Alaskan Native | - | - | - | - | - | - |
| Asian | - | - | - | - | - | - |
| Native Hawaiian/Pacific Islander | - | - | - | - | - | - |
| Other | 2 | 14.3 | - | - | 2 | 18.2 |
| Ethnicity | ||||||
| Non-Hispanic or Latino | 13 | 92.9 | 19 | 100.0 | 10 | 90.9 |
| Hispanic or Latino | 1 | 7.1 | - | - | 1 | 9.1 |
| Religion | ||||||
| Christian | 8 | 57.1 | 15 | 78.9 | 5 | 45.5 |
| Catholic | 2 | 14.3 | - | - | 1 | 9.1 |
| None | 4 | 28.6 | 1 | 5.3 | 2 | 18.2 |
| Agnostic | - | - | 1 | 5.3 | 2 | 18.2 |
| Hindu | - | - | - | - | - | - |
| Muslim | - | - | 1 | 5.3 | - | - |
| Jewish | - | - | - | - | - | - |
| Buddhist | - | - | - | - | - | - |
| Other | - | - | 1 | 5.3 | 1 | 9.1 |
| Highest level of education completed | ||||||
| Some high school | 9 | 64.3 | - | - | - | - |
| High school diploma or GED | 2 | 14.3 | 3 | 15.8 | 1 | 9.1 |
| Some college, no degree | 1 | 7.1 | 4 | 21.1 | 7 | 63.6 |
| Associate degree | 1 | 7.1 | 2 | 10.5 | - | - |
| Bachelor’s degree | - | - | 7 | 36.8 | 2 | 18.2 |
| Graduate or professional degree | - | - | 2 | 10.5 | 1 | 9.1 |
| Other | 1 | 7.1 | 1 | 5.3 | - | - |
| Total household income | ||||||
| Less than $25,000 | 1 | 7.1 | - | - | 1 | 9.1 |
| $25,000 to $49,999 | 1 | 7.1 | 5 | 26.3 | 1 | 9.1 |
| $50,000 to $74,999 | - | - | 5 | 26.3 | 4 | 36.4 |
| $75,000 to $99,999 | 1 | 7.1 | 4 | 21.1 | 1 | 9.1 |
| $100,000 to $149,000 | - | - | 1 | 5.3 | 1 | 9.1 |
| $150,000 or more | 1 | 7.1 | 2 | 10.5 | 3 | 27.3 |
| Unsure | 10 | 71.4 | 2 | 10.5 | - | - |
| Diagnosis Type | ||||||
| Brain and spinal cord tumors | 2 | 14.3 | - | - | - | - |
| Leukemia | 1 | 7.1 | - | - | - | - |
| Lymphoma | 6 | 42.9 | - | - | - | - |
| Solid tumors (Non-CNS) | 5 | 35.7 | - | - | - | - |
| Total CED | ||||||
| <4g/m2 | 3 | 21.4 | - | - | - | - |
| 4g/m2 or greater | 5 | 35.7 | - | - | - | - |
| Unknown | 6 | 42.9 | - | - | - | - |