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. 2019 Mar 29;10(4):523–530. doi: 10.1007/s12687-019-00417-8

Table 1.

Minimal data set of the PopGen 2.0 Network (P2N)

Sample-related data
  Identifier of host biobank
  Unique P2N sample identifier
  Host biobank-specific sample identifier(s)
  Kind of sample
  Date of sampling
  Date of sample processing
  Initial amount of material
  Remaining amount of material
  Storage location
  SPREC 2.0 (Lehmann et al. 2012) for fluid samples
  Type of sample
  Type of primary container
  Pre-centrifugation
  Centrifugation
  Second centrifugation
  Post-centrifugation delay
  Long-term storage
  SPREC 2.0 (Lehmann et al. 2012) for solid samples
  Type of sample
  Type of collection
  Warm ischemia time
  Cold ischemia time
  Fixation/stabilization type
  Fixation time
  Long-term storage
Donor-related data
  Unique donor identifier (i.e., the pseudonymized master person index)
  Host biobank-specific donor identifier(s)
  Donor year of birth
  Donor sex
  ICD code of main donor diagnosis at time of sampling
  Associated MeSH terms
  Associated MIM codes

All attributes are mandatory but missing values are allowed in order to facilitate data entry from third party sources

SPREC Standard PRE-analytical Code, ICD International Classification of Disease, MeSH Medical Subject Headings, MIM Mendelian Inheritance in Man