Table 3.
Level identified | Barrier | No of studies | References |
Individual level | Lack of (consumer) knowledge about ACP | 15 | 14 39 44–46 49 54 56 57 59 62 66 72 79 82 |
Attitudes—perceived irrelevance | 7 | 13 14 39 40 44 50 76 | |
Trust/questions of efficacy | 4 | 40 41 44 57 | |
Denial/emotions/reluctance | 10 | 14 32 39 40 44 50 54 56 57 72 | |
Interpersonal level | Role ambiguity—GP expectation patient will initiate discussion about ACP | 7 | 13 46 51 56 58 62 83 |
Role ambiguity—patient expectation GP will initiate discussion about ACP | 5 | 41 42 49–51 83 | |
GP—patient relationship | 5 | 44 49 55 57 62 | |
Concern with family relationships | 6 | 13 14 32 39 44 74 | |
Preference for informal discussion with family | 1 | 13 | |
Provider level | Lack of (GP) knowledge/skills/confidence | 18 | 14 31 44 46 49 53–56 58–60 63 69 74 77–79 |
Lack of time | 12 | 14 39 46 53–55 58 61 66 74 76 79 | |
Misc concerns including legal uncertainty, prognosis, best time | 9 | 54 55 60 61 68 70 75 78 83 | |
Doubts about efficacy of ACP | 3 | 44 58 | |
System level | Lack of linkages and mechanism for sharing ACP | 5 | 31 44 54 58 60 80 |
Lack of funding mechanisms | 2 | 56 60 | |
Lack of standard templates, tools, documents, IT systems | 6 | 44 45 53 57–59 | |
Accountability | 1 | 46 |
ACP, advance care planning; IT, Information technology.