Table 3.
Mortality outcomes | Life impact outcomes | Pathophysiological manifestation outcomes | Resource utilisation outcomes | Adverse event outcomes |
Mortality | Home parenteral nutrition | Quality of life for the child | Short bowel syndrome | Abdominal compartment syndrome† |
Need for total parenteral nutrition postdischarge | Bowel lengthening procedure required | Cholestasis | Bowel ischaemia | |
Reoperation | Time on total parenteral nutrition | Unspecified measures of growth* | Bowel obstruction† | |
Societal costs, including financial costs for the family | Time on parenteral nutrition | Bowel resection† | ||
Rehospitalisation | Liver transplant | Intestinal perforation† | ||
Length of stay* | Small bowel transplantation | Necrotising enterocolitis† | ||
Need for a permanent stoma | Infection with systemic sequelae | |||
Chronic GI symptoms | Anastomotic stricture | |||
Gastrointestinal dysfunction | Gastrointestinal complication† | |||
Neurodevelopmental outcomes | Intestinal failure associated liver disease |
*Outcomes not meeting criteria for automatic discussion at the consensus meeting and only promoted after unanimous agreement by the meeting attendees.
†Outcomes combined to the composite outcome severe gastrointestinal complication.
GI, gastrointestinal.