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. 2019 Sep 24;20:e134. doi: 10.1017/S1463423619000550

Table 1.

Measures of COPILOT-study

Concept Instrument 0* 12 24
Patient
Primary outcomes patients’ experience of health care delivery (1) PACIC X X X
patients’ experience of health care delivery (1) NPS X X X
patients’ experience with integration of care (1) QUOTE X X X
Quality of life, generic health (2) EQ-5D-5L X X X
Quality of life, social perspective (2) ASCOT X X X
Impact of self-reported disease-related limitations (2) Developed questions X X X
Clinical indicators of disease severity and activity (2) GPs electronic patient records X X
Resource use & sickness leave (4) Tic-P X X X
Other variables Age X X X
Gender X X X
Social economic status X X X
n chronic diseases X X X
Type chronic diseases X X X
Health literacy HLS-EU-Q16 X X X
Functional and social ability InterRAI CU-SR X X X
Primary care professional
Primary outcomes Job satisfaction (3) Developed questionnaire X X

PACIC = patient assessment of chronic illness care; NPS = net promotor score; QUOTE = quality of care through patients’ eyes; EQ-5D-5L = EuroQol 5D – 5 level version; ASCOT = adult social care outcomes toolkit; CU-SR = check-up self-report; Tic-P = trimbos and iMT questionnaire on costs associated with psychiatric illness; HLS-EU-Q16 = 16-item Dutch version of the European health literacy short survey questionnaire; VAS = visual analogue scale.

*

Months after baseline.

(1) Patient experience with chronic primary care.

(2) Patients’ health.

(3) Societal costs and costs of resources use.

(4) Care professionals’ experiences with management of multimorbidity.