Table 2.

Patient and family caregiver quality of life and symptom burden (n = 20)

Survey	Patients Mean ± SD or n (%) (n = 10)	Family Caregivers mean ± SD or n (%) (n = 10)
PROMIS Global Health-10, Physical Health Domain t-score	35.8 ± 5.5; range = 26.7–44.9	46.2 ± 12.8; range = 23.5–67.7
Poor quality of life*	4 (40)	2 (20)
PROMIS Emotional Distress-Anxiety Short Form t-score	58.3 ± 13.6; range = 42.1–75.8	61.0 ± 15.6; range = 42.1–82.7
Moderate–severe anxiety symptoms†	4 (40)	5 (50)
PROMIS Emotional Distress-Depression Short Form t-score	51.1 ± 11.8; range = 37.1–68.3	53.4 ± 10.5; range = 37.1–66.3
Moderate–severe depressive symptoms‡	2 (20)	3 (30)
UAB Life Space Assessment score	49.5 ± 26.3; range = 15–102	72.9 ± 26.3; range = 35.120
Social isolation§	6 (60)	2 (20)

Definition of abbreviations: PROMIS = Patient-Reported Outcomes Measurement Information System; UAB = University of Alabama at Birmingham.

^*PROMIS Global Health-10, Physical Health Domain t-score ≤35 (<1.2 SD below mean; lower scores worse).

^†PROMIS-Emotional Distress Anxiety t-score ≥60 (>1 SD above the mean; higher scores worse).

^‡PROMIS-Emotional Distress Depression t-score ≥60 (>1 SD above the mean; higher scores worse).

^§UAB Life Space Assessment Score ≤60 (lower scores worse).