Table 1.
Health professional and patient advocate demographic data
| Total (n = 31) | |
|---|---|
| Age group (years) | |
| 21–30 | 2 |
| 31–40 | 8 |
| 41–50 | 10 |
| 51–60 | 11 |
| Gender | |
| Female | 23 |
| Male | 8 |
| Profession | |
| Clinical geneticist | 3 |
| Fetal medicine specialist | 3 |
| Genetic counsellor | 2 |
| Nurse specialist (paediatric care) | 3 |
| Nurse specialist (adolescent/adult care) | 1 |
| Occupational therapist (paediatric care) | 2 |
| Endocrinologist / metabolic bone specialist (paediatric care) | 7 |
| Patient advocate | 2 |
| Physiotherapist (paediatric care) | 5 |
| Psychologist (paediatric care) | 1 |
| Rheumatologist (adolescent/adult) | 2 |
| Years working with families affected with OI | |
| ≤5 | 13 |
| 6–15 | 11 |
| 16–25 | 7 |
| Current practice location | |
| England (North) | 4 |
| England (Midlands) | 5 |
| England (London) | 12 |
| England (South) | 8 |
| Scotland | 2 |