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Motivation of participants not to consent (n = 35, multiple responses possible)
| Motivational item | Number (%) |
|---|---|
| Worries about data security | 14 (40.0) |
| Wanting to know type of research | 13 (37.1) |
| Wanting to know who does research | 12 (34.3) |
| Denial of research on other than own disease | 5 (14.3) |
| No personal benefit expected from consenting | 4 (11.4) |
| Insufficient personal benefit from research so far | 3 (8.6) |
| Worries about disadvantages when consenting | 0 (0.0) |
| No specific reasons | 7 (20.0) |
