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. 2019 May 3;27(9):1379–1388. doi: 10.1038/s41431-019-0423-4

Table 1.

Review of clinical findings associated with three new BMP4 cases

Subject 1 2 3
BMP4 variant c.1052C>G p.S351*; c.751C>T p.H251Y arr[hg19] 14q22.1q22.2(53001803_55443425)x1 arr[hg19] 14q22.1q22.3(53854436_56266758)x1
Other clinically relevant variants arr[hg19] 17q21.3(43706876_44345048)x1 (Koolen de Vries syndrome)
Inheritance c.1052C>G p.S351* de novo; c.751C>T p.H251Y inherited from mother; cis/trans status not determined De novo De novo
Sex Male Male Female
Ethnicity European/Vietnamese Caucasian White Mediterranean
Age at assessment 4-years-old 8-years-old 13-years-old
Birth 42-year-old G2P2 mother; delivery was at term through scheduled C-section; mild jaundice in the neonatal period N/R IUGR, born at 37 weeks, restricted growth from 32nd week, oligohydramnios
Birth weight in grams (%-tile) 3345 g (36th, −0.35 SD) 2520 g (5th, −1.66SD) 2100 g (1st, −2.52SD)
Birth length in cm (%-tile) N/R 48 cm (23rd, −0.75SD) 48 cm (30th, −0.54SD)
OFC at birth in cm (%-tile) N/R N/R N/R
Weight in kg (%-tile) At 3 years: 16.5 kg (90th, 1.21 SD) At 3 years: 12.8 kg (15th, −1.0 SD) At 5 years: 14.6 kg (5th, −1.67 SD); at 8.3 years: 20 kg (3rd, −1.90 SD); at 12.3 years: 32.7 kg (6th, −1.52 SD)
Height in cm (%-tile) At 3 years: 97 cm (70th, 0.52 SD) At 3 years: 90 cm (9th, −1.33 SD) At 5 years: 104 cm (22nd, −0.78 SD); at 8.3 years: 119 cm (4th, −1.80 SD); at 12.3 years: 138.5 cm (2nd, −1.99 SD)
OFC in cm At 3 years: 56.5 cm At 3 years: 49 cm At 5 years: 49 cm; at 8.3 years: 51 cm
Growth Growth is normal, following upper percentiles for both height and weight; macrocephaly Slow Slow, poor weight gain but in the growth curve
Ophthalmological findings Early myopia, not progressive Bilateral Peters anomaly, sclerocornea Exophthalmia, strabismus, slanting of palpebral fissures
Craniofacial dysmorphisms Widely open fontanelles at birth, macrocephaly, prominence of the occiput, frontal bossing; slightly flat facial profile with wide-set and prominent eyes, flat infraorbital ridges, long eyelashes, and mild downslanting palpebral fissures; micrognathia and mild overbite with a high-arched palate; ears were over-folded and small Large forehead, small nose Craniosynostosis (metopic), surgery at 9 months; dolichocephaly
Brain MRI findings Decreased volume of white matter in both cerebral hemispheres with the cortical margins nearly reaching the ventricular surface, suggestive of periventricular leukomalacia; unusual gyral patterns, particularly within the right occipital parietal region where there is a focal area of cortical thickness suggestive of polymicrogyria Normal transfontannelar ultrasound Nonspecific, generalized diminished white matter
Intellectual disability Yes, mild Yes, mild, requires special education services Yes, mild to moderate
Global developmental delay Yes, mild delay Yes, mild Yes, mild to moderate
Speech delay Mild delay with his receptive and expressive language skills No Yes, mild to moderate
Hypotonia/motor delay Mild delayed milestones, mild global hypotonia with wide based gait, clumsy, walking at 15 months Yes, walked at 28 m Hypotonia present
Hand and foot anomalies Bilateral hypoplastic postaxial polydactyly involving hands (digits surgically removed), normal feet Left hand postaxial polydactyly, left foot 4/5 syndactyly Joint hyperlaxity
Additional clinical findings Increased body hair on the back; two regressing hemangiomas in the lower back area; mild pectus excavatum; mild hypermobility in small hand joints, elbows, and knees; kidney ultrasound normal; oral aversion to solids as a child; hearing normal Hyperextensible joints Pelvic ectasia (unilateral), atrial septal defect, tiny aspect

N/A not applicable, N/R not reported