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. 2019 Jan 25;27(6):909–918. doi: 10.1038/s41431-019-0335-3

Table 1 b.

Previously published patients with PNH and pathogenic genomic imbalances identified in our overall PNH/CNV series study

Patient ID Age; gender PNH type Additional MRI abnormalities Epilepsy: age onset; seizures type; outcome Cognition Clinical features Genomic coordinates (hg19); size of the CNV Inheritance Previously published in:
#7; Fig. 1o, p, Supplementary Figure 1C 18 y, 4 m; F Bilateral, asymmetric multiple and contiguous nodules along the walls of both ventricles White matter hyperintensities No Mild ID Hypotonia, facial dysmorphisms, nevus in the dorsal region, syndactyly of 2nd–3rd fingers and toes, valgus knee 46,XX,t(2;4)ins(2;4)(4qter-->4q28.3::2p12-- > 2qter;4pter-- > p15.31::p14-->4q24::2p12::4q24-->4q28.3::2p12-- > 2pter) g.[chr4:qter_(138565502_137875918)::chr2:(76090296_76279717)_(79702031_79871279)_(81867870_82019448)del_cen_qter] (der2) and g.[chr4:pter_(20487909_20490678)_(37919488_37929242)del_cen_(101100001_107700000)::chr2:(79702031_79871279)_(81867870_82019448)::chr4:(101100001_107700000)_(138565502_137875918)::chr2:(76090296_76279717)_pter](der4); 17.4 Mb DN [16] Patient LL
#8 8 y; F Bilateral PNH Dilated Virchow–Robin spaces, white matter hyperintensities No Mild ID Joint laxity, facial dysmorphisms, severe bilateral sensorineural hearing loss chr6:g.(pter_154130)_(1622218_1635408)del; 1.6 Mb DN [14] Patient 2
#9 3 y; M Multiple scattered and bilateral heterotopic nodules along the bodies of the lateral ventricles Enlarged ventricles 3 y; generalized; remission Mild ID Hypotonia, facial dysmorphisms, motor stereotypes, self-injurious behavior, sleep disturbances, ostium secundum chr17:g.(16581147_16590775)_(20463302_20515050)del; 3.8 Mb DN [12] Patient 1
#10 16 y; M Bilateral symmetric nodules along the walls of the lateral ventricles Mega cisterna magna Neonatal seizures Mild ID Hyperactivity, sleep disturbances, self-injurious behavior chr17:g.(16812122_16822742)_(20193110_20204871)del; 3.4 Mb DN [12] Patient 2
#11 5 y; F Bilateral and contiguous nodules in temporal and occipital horns NA 9 m; spasms; drug-resistant Severe ID Facial dysmorphisms, absent speech chr5:g.(87005079_87050601)_(95512884_95536095)del; 8.4 Mb DN [13] Patient 2
#12 13 y; M Bilateral PNH in the temporal horns Corpus callosum hypoplasia, colpocephaly, left perisylvian polymicrogyria 1 y; focal; drug-resistant Moderate ID Hypotonia, facial dysmorphisms, strabismus chr6:g.(162748288_162761498)_(170911181_qter)del; 8.2 Mb DN [9] Patient 2
#13a 6 y; M Bilateral PNH in the temporal horns Corpus callosum hypoplasia, colpocephaly, cerebellar hypoplasia 16 m; focal Mild ID Facial dysmorphisms, clumsiness, strabismus, behavioral problems chr6:g.(169643823_169653723)_(170591590_170609088)del; 0.9 Mb Mat [9] Patient 12
#13b (mother of #13a) 25 y; F Bilateral PNH in the temporal horns Corpus callosum hypoplasia, colpocephaly 4 y; focal Mild ID Facial dysmorphisms, clumsiness, behavioral problems chr6:g.(169643823_169653723)_(170591590_170609088)del; 0.9 Mb NA [9] Patient 11

The CNV coordinates are reported according to the HGVS nomenclature [38] and refer to GRCh37/hg19

CNV copy number variant, MRI magnetic resonance imaging, ID intellectual disability, DN de novo, NA not assessed, PNH periventricular nodular heterotopia, M male, F female, y year, m month