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. Author manuscript; available in PMC: 2020 May 1.
Published in final edited form as: Pediatr Blood Cancer. 2019 Jan 21;66(5):e27617. doi: 10.1002/pbc.27617

TABLE 4.

Ethical issues

Ethical Issue n %*
Obligation to provide non beneficial treatment 10 29
DNR 9 26
Parental decision making 8 23
Goals of care 7 20
Patient autonomy 5 14
Informed consent 3 9
Withdrawal/withholding of life sustaining therapy 3 9
Treatment refusal 2 6
Resource allocation 1 3
Truth telling 1 3
Advance directives 0 0
Confidentiality 0 0
Pain management 0 0
Other 6 17
  Obligation to provide potentially toxic treatment with concern for inconsistent compliance 4 11
  Principle of proportionality 2 6
*

Total exceeds 100% because most cases had > 1 ethical issue; mean = 1.5 ethical issues/case